Like anyone else in the world with a Facebook account, I’ve been bombarded for several days by videos of celebrities doing the ice bucket challenge. The first one I saw was that of Bill Gates. I then slowly began to see videos done by non-celebrities. In the beginning I could not understand what it was all about, even after watching some videos from beginning to end. Why were people throwing cold water on their heads? Why were celebrities doing it? There were no explanations in any of the videos I saw. I then saw a few media reports about the challenge. It was only then that I began to understand that it was somehow linked to a disease called ALS.
I Googled ALS and learned it was a degenerative disease of motor neurons that results in its latest stages in full paralysis. Someone eventually posted a video on my Facebook feed of a young man affected by the disease explaining what ALS was, how it affected his life, and what it had done to his mother. He said that people were doing the ice bucket challenge in order to raise awareness about the illness and to raise funds for more research on the disease.
That did not make sense to me. How does a video of a person dumping ice water on their heads create awareness about ALS or get people to donate if no one in those videos mentions the disease, what it is, or how to donate? They also made no mention whatsoever of the fact that they had donated themselves. I was just seeing silly videos of people pouring water on their heads.
And so, as is my nature, I began to get upset.
Instead of sharing the many ice bucket challenges appearing in my feed, I posted the video of the young man affected by the disease. I wrote that this was the kind of thing I would rather be seeing if people really wanted to create awareness. I also posted a video of Sir Patrick Stewart in which he sits in front of an ice bucket writing a check, and once done, takes some ice out of the bucket, puts it into a glass, pours himself a drink, and raises his glass to the camera in a toast. That made sense to me. This was someone whose aim was to show people that this was not about having fun. It was about donating money.
Now watch me link this to the deaths of hundreds of people in Gaza, including women and children, and to the beheading of an American journalist by a Muslim militant extremist. (more…)